I think that I have a friend or two who genuinely care about me and my illnesses. I believe that I have some acquaintances who would be certain to talk to me if we were in the same place, coincidently.
Like this… “It makes planning nearly impossible. Many humans take for granted that they will wake up feeling “normal”, go to work, go see friends, go to their child’s sports game – same as always. 🌅👩🏻🏫👩🏼⚕️👨🏼💻👩🏻🏫👩🎤👮🏻👯♂️
For someone battling a chronic illness, you just don’t know. Instead of “planning”, it’s more like “hoping”. You “hope” you wake up feeling ok, you “hope” you can make it through work, you “hope” you can make it through your child’s play…..and each event takes its toll on your energy and health.
She goes on to write, “It is not because you no longer care or because the event is not important to you or the person is not important to you. You are missing out because your body has given out.
In fact, your body may be 4 or 5 events PAST too many by the time you just give out. It’s like driving a car that is running out of gas….you lasted on fumes, but finally despite all your efforts, the fumes have run out. The gas pedal is all the way to the floor, but she’s not going any further.”
My doctor had requested some blood work from me…, which, upon return, explained a plethora of my health problems. She was speaking another language (Greek? Latin? Dr. Speak?), regardless I needed Google. And here I am. 🌎.
Meghan O’Rourke has an essay called “I had Autoimmune Disease and then it had me.” It was printed in The New Yorker Magazine, Aug. 26, 2013. It came up in a Google Search for Hypothyroidism. She was speaking my language.
💩. I don’t even like me when I’m on fumes. 👺